Post Diagnostic Intervention – Support following a diagnosis of Dementia

This service is for people who live in Northumberland and who are registered with a GP in Northumberland and provide support for the person living with the diagnosis and their family/care giver.

Clinicians cover these topics;
• Information about dementia
• Practical advice and aids
• Carer support
• Legalities and benefits
• Emotional impact
• Support in the community

This is for a person living with the diagnosis and their family member/care giver.

The team can provide useful information, connect you with the services that can support you and help you create a personal Living Well Plan to help you to maintain the best quality of life you can.

We also offer a series of group sessions with speakers to provide information, answer questions and support you in coming to terms with the diagnosis. Venues are booked in the local community.

If you are unable to attend a group session then our skilled clinicians will be able to provide a home visit.

The sessions with a clinician from Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust and are limited to between three and ten sessions. There is no time limit for the support you can access from Carers Northumberland and Alzheimer’s Society. They are available whenever you need them, throughout your journey.

• I found it friendly and enjoyed hearing everybody’s ideas
• Just being able to say how we feel plus listening to others
• Helping mum overcome worry about meeting other people with dementia
• Sharing ideas, suggestions for aids, chatting
• Just being with others
• All useful
• Sharing views
• Meeting others was valuable
• Well communicated, useful information more relevant to dementia patient not so far down the disease process

Staff can arrange an interpreter if you need one.

What if I have a comment, suggestion, compliment or complaint about the service?
If you want to make a comment, suggestion, compliment or complaint you can:
• talk to the people directly involved in your care
• ask a member of staff for a feedback form, or complete a form on the Trust website www.cntw.nhs.uk/contact/complaints/
• telephone the Complaints Department Tel: 0191 245 6672
• email [email protected]
We are always looking at ways to improve services. Your feedback allows us to monitor the quality of our services and act upon issues that you bring to our attention.

You can provide feedback in the following ways:
– the quickest way for you to do this is to complete our short online survey at
www.cntw.nhs.uk/yourvoice
– complete a Your Voice survey, available on wards, reception areas or from staff
– other options for sharing your feedback and experience www.cntw.nhs.uk/yourfeedback

Patient Advice and Liaison Service (PALS)
PALS provide confidential advice and support, helping you to sort out any concerns that you may have about any aspect of your or your loved ones care.

We act independently when handling patient and family concerns, liaising with staff, managers and, where appropriate, relevant organisations, to negotiate prompt solutions. If necessary, we can also refer patients and families to specific local or national-based support agencies.

PALS
Tel: 0800 032 0202
Email: [email protected]
Post: FREEPOST PALS

9.00 am – 4.30 pm, Monday to Friday
An answerphone is available at all times for you to leave a message. A member of the PALS team will aim to return your call as soon as possible.

Post Diagnostic Intervention
Tel: 01670 844 730 or 01665 608 000, 9am – 5pm, Monday – Friday
Morgan McClean, Pathway Manager
Ruth Cook, Advance Clinical Nurse Practitioner

Admiral Nurse dementia helpline
Tel: 0800 888 6678 Monday to Friday: 9am to 9pm
Saturday to Sunday: 9am to 5pm, open Bank Holidays, except 25th December
Email: [email protected]

Alzheimer’s Society
Tel: 01670 813 255, 9am – 4.30pm, Monday – Friday
Email: [email protected]

Carers Northumberland
Tel: 01670 320 025, 9am – 5pm, Monday – Friday
Email: [email protected]
107 & 109 Station Road, Ashington, NE63 8RS

Further information about the content, reference sources or production of this leaflet can be obtained from the Patient Information Centre. If you would like to tell us what you think about this leaflet please get in touch.

This information can be made available in a range of formats on request (eg Braille, audio, larger print, easy read, BSL or other languages). Please contact the Patient Information Centre
Tel: 0191 246 7288

Published by the Patient Information Centre

2023 Copyright, Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust

Ref, PIC/881/0324 March 2024 V2

www.cntw.nhs.uk Tel: 0191 246 7288

Review date 2026